Considerations for Returning Individual Genomic Results from Population-Based Surveys: Focus on the National Health and Nutrition Examination Survey: Proceedings of a Workshop

Considerations for Returning Individual Genomic Results from Population-Based Surveys: Focus on the National Health and Nutrition Examination Survey: Proceedings of a Workshop

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Nov 5, 2023 · انگلیسی · جلد نرم (210 صفحات)
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جزئیات کتاب

فرمت جلد نرم
صفحات 210
زبان انگلیسی
منتشر شده Nov 5, 2023
ناشر National Academies Press
ISBN-10 0309704898
ISBN-13 9780309704892

توضیحات

This workshop proceedings offers a deep dive into the complexities of returning individual genomic results to participants in population-based surveys. With the National Health and Nutrition Examination Survey as a focal point, the discussions center around the ethical, technical, and logistical considerations that come into play when sharing genetic data.

Celeste Stone and the Engineering National Academies of Sciences shine a light on how this information can empower individuals while navigating the tricky waters of privacy and consent. By blending insights from behavioral and social sciences, the authors highlight the importance of clear communication and participant engagement in the evolving landscape of genomic research, making it a must-read for anyone interested in health policies and genetics.

ژانرها

سلامت و تندرستی
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