Описание
This workshop proceedings offers a deep dive into the complexities of returning individual genomic results to participants in population-based surveys. With the National Health and Nutrition Examination Survey as a focal point, the discussions center around the ethical, technical, and logistical considerations that come into play when sharing genetic data.
Celeste Stone and the Engineering National Academies of Sciences shine a light on how this information can empower individuals while navigating the tricky waters of privacy and consent. By blending insights from behavioral and social sciences, the authors highlight the importance of clear communication and participant engagement in the evolving landscape of genomic research, making it a must-read for anyone interested in health policies and genetics.
Celeste Stone and the Engineering National Academies of Sciences shine a light on how this information can empower individuals while navigating the tricky waters of privacy and consent. By blending insights from behavioral and social sciences, the authors highlight the importance of clear communication and participant engagement in the evolving landscape of genomic research, making it a must-read for anyone interested in health policies and genetics.
Детали книги
Формат
Мягкая обложка
Страницы
210 страниц
Язык
Английский
Опубликовано
Nov 5, 2023
Издатель
National Academies Press
Издания
Изданий: 2
ISBN-10
0309704898
ISBN-13
9780309704892